Tysen was having symptoms of shunt failure for about 3 weeks before he finally had surgery. He would have an episode once every 2-3 days and then would be fine after a very long nap (sometimes 4-5 hours). He had scans right before the symptoms started and they showed that everything looked normal.
The worst part about this is his symptoms. He will be in a lot of pain and will be very sick and lethargic. But, they can't go in without something showing on the scans because they don't want to cut him open and nothing be wrong. So we have to wait until Tysen gets worse (like non stop pain) to go into ER and get more scans.
The scans showed water building up so they did the surgery.
His shunt was blocked once again. They put new hardware and BIGGER hardware so hopefully that will help prevent blockage.
He is at the age now that he is aware of what is going on and he was SCARED!
He is starting to realize that the doctor's office or the hospital is not a great place to be.
I hated seeing him go through this realization but it was bound to happen. He did really well though. After the surgery is the best because he is back to his old self and he doesn't understand what all the fuss is about. The pain is gone, the fear is kind of gone, and he is responsive (before surgery his symptoms cause him to be close to non responsive. He just stares blankly and will not respond most of the time).
We are so happy that it was not infection and we are so blessed that he is well and that the doctors know exactly how to fix the problem.
A HUGE thankyou to those who brought meals, took care of baby and dog, and those who were praying for his well being. We can never thank you enough for that wonderful support!
Love you Tysen! You are so STRONG!
He is very much back to his old self :-)
With some of his cousins...making a new fashion statement!